Our Commitment To
Your privacy on the internet is
important to us. To better protect your privacy, we provide this notice
explaining our online information practices and the choices you can make
about the way your information is collected and used. To make this
notice easy to find, we make it available on the main page and at
every point where personally identifiable information may be requested.
does EBAN collect and how will it be used?
Our website's forms may require
you to provide contact information (like your name, e-mail and
address) and demographic information (like your zip code or age). We may
use the contact information from these sponsorship and survey forms
to send you information about the programs or events of EBAN,
or news related to Epidermolysis Bullosa. You may opt out of receiving
future mailings by sending us an email indicating this is your choice.
"Cookies" are small pieces of
information that are stored by your browser on your computer's hard
drive. Since you do not have to 'log in' to our site to view it, there
are no cookies stored, and cookies do not contain any personally identifying
information anyhow. Most web browsers automatically accept cookies, but
you can usually change your browser to prevent that. Even without
accepting cookies, you can still all of the features throughout the EBAN website.
A cookie cannot read data off your hard disk.